We have chosen to support Action Duchenne with this year's European Broker Meeting. For every attendee registration made after September 1st we will donate 100 Euro to Action Duchenne. Next to that we will dedicate Thursday night's Gala Dinner to accumulate as many funds as possible for Action Duchenne!

One of our long time members Tony Levene's (Eurosimm) 6 year old son Joey has Duchenne Muscular Dystrophy. Following Joey's diagnosis 5 years ago Tony took the positive approach and became heavily involved in fundraising and research projects, eventually becoming a voluntary trustee of Action Duchenne - a parent and patient led organisation fighting for a cure and viable treatment for Duchenne. Duchenne Muscular Dystrophy is a devastating terminal muscle wasting condition. Imagine being told that your beautiful little boy will be in a wheelchair by the time he is 9. Imagine being told that he will then gradually lose the use of ALL his major muscles. Imagine being told that he will be lucky to live past his late teens. This is the sudden heartbreaking reality faced by parents with a child diagnosed with Duchenne. Now imagine knowing that you can help to make a difference to Joey and everybody living with Duchenne. There is no cure or viable treatment for Duchenne. Duchenne is 100% fatal. Duchenne is the number 1 genetic childhood killer world wide.

100% of the funds raised for Action Duchenne through this year's European Broker Meeting will go to fund "Pilot Trials Now", funding clinical trials of existing drugs that show promise in the treatment of Duchenne. For the first time in the history of Duchenne, ground-breaking new therapies are being developed that show realistic hope and promise to the thousands of boys world-wide living with this heartbreaking condition. Tony and his family have always had a positive outlook whilst doing everything they can to ensure a viable treatment is found as soon as possible, for Joey and this generation of boys living with Duchenne. There is no cure or active treatment but there is HOPE, please make a difference and make this hope an exciting reality.

For further information on Action Duchenne please contact Esther Derber on +44 1706 693 399 or go to www.actionduchenne.org.